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An Insatiable Hunger - Part 3 - Growth hormones are the possible answer to PWS?

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Life is full of challenges – but some people face more than their fair share. Some grow up in a world where parents must padlock the fridge and cupboard doors to keep food away from their children. This compelling one-hour documentary follows four families – each with children living with Prader-Willi Syndrome (PWS).

A condition afflicting more than 400,000 people worldwide and more than a hundred New Zealand families, PWS is a rare, non-inherited, genetic defect. It is lifelong and life threatening. It affects all races and both sexes and it is not known how it’s caused.
On average, two Kiwi babies a year will be born with the condition which is characterised by: an insatiable appetite; low muscle tone limiting exercise and play; and behavioural problems. Cruelly, the insatiable appetite is coupled with a slow metabolism, meaning that PWS kids gain weight at a faster rate than other children.

While there is no cure for the condition, regular injections of Growth Hormone have been proven to reduce fat and improve muscle tone, lowering the chance of obesity and related complications. But New Zealand PWS kids face an ongoing battle to fit within strict criteria for funded treatment set by Pharmac, NZ government drug-governing agency. This, despite the fact that in many countries overseas, the treatment is government-funded for those with PWS.

Each stage of the condition – from stunted development at birth, to the beginnings of the insatiable appetite around age 3-5, to behavioural problems and adolescence, through to independent living – opens up a unique set of challenges.

Insatiable Hunger takes us inside this remarkable condition as we follow a year in the life of our families – each at different stages of the condition and each facing daily battles. All are on the brink of change and life as they know it is about to change.

Will 18-month-old Amelia Reid be given access to the life-changing Growth Hormone treatment so that she can have a chance at developing normally? Will this be the last year that three-year-old Cameron O’Reilly has free access to food and treats? Will 11-year-old Darcy Harris complete the school year in the mainstream education system? Will 22-year-old Francie Thornton be forced out of her sheltered flat because she’s unable to manage her weight – and her temper?

Insatiable Hunger offers us a rare glimpse at what it’s like to live inside the world of PWS – the pain, the frustrations, the joys. It reveals the strength of the human condition over immense odds.


An Insatiable Hunger - Part 3 - Growth hormones are the possible answer to PWS?



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13 comments:

  1. They could feed the kids celery!! as much as they want. And lettace.

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  2. INBREEDING! Get it? I am you. I am from these islands. I've seen what you have. Admit it.

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  3. OK - Just reality. No God damn way that is 1Kcal /day. I am a scientist. I know of what I speak. You are lying through your teeth.

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  4. My heart goes out to these families, cant believe some of the idiotic comments on videos surrounding weight online, regardless of the reason. This illness is particularly heart breaking for parents

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  5. That was 4 years ago.. he’s prob out there eating his parents out of a house and home by now.

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  6. Worried about her weight but smokes cigarettes.. lmao the British are really something else.

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  7. When will you release new fat doctor episodes on youtube_

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  8. So she was on a 1000 calorie diet but was able to sneak to the corner store and continue to buy bad food which caused her to gain weight? That doesn't sound like 24/7 care to me. She would have had to go to that corner store and bought a bunch of stuff practically every day in order to gain weight like that.

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  9. I tried several other products to improve my height in the last year but in vain. Then to my surprise, on my birthday my parents bought me Growth Sinerama Wmx Height Enhancer as a present. I was very skeptic but having nothing to loose I gave it a try. Now, after doing the program I gained 2 inches of real height search on Google “ Growth Sinerama Wmx “

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  10. What a horribly cruel disease.

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  11. cameron is soooo cute!!! and his parents are amazing. I wish them all the best.

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